What Is Hantavirus, the Rare Disease That Killed Betsy Arakawa?
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
My son’s rare disease diagnosis spurred me to ditch Big Pharma for a biotech startup
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
Florida Politics1d
Adam Anderson’s ‘Sunshine Genetics Act’ advances, offering promise for rare disease research and treatment
Ensuring every newborn has access to life-saving screening and treatment is both a moral and economic imperative.' ...
Unlocking Answers: Transforming Rare Disease Diagnosis
Our goals are to expand access to genomic testing and develop cutting-edge genomic testing to help more families get answers ...
STAT12d
To fight for those with rare diseases, Trump must reform and modernize the FDA thoughtfully
With the right policies, advanced science, and strong leadership in government agencies, Donald Trump has the power to save ...
Batten Disease: Parents fight for costly drug for children's rare disease to remain on NHS
Oliver and Amelia Carroll have Batten Disease - an incurable genetic disorder that causes rapid decline in a child's ability to walk, talk and see. | ITV News Granada ...
Metro East 6-year-old with rare disease is competing to win an adaptive bike
A rare disease has taken a piece of Aubrey's childhood away from her: the ability to ride a bike. But, a public vote could ...
Remarkable Women: Middletown pastor with rare disease overcomes challenges to lead others
March is Women’s History Month, and News 8 is celebrating some of the remarkable women in Connecticut.