In this BBC Points West report, Darren and Matt share their powerful stories of living with Friedreich’s Ataxia — a rare, progressive condition affecting balance, coordination, and movement. Dr Paola Giunti from the UCL Ataxia Centre explains how early access to emerging treatments can make a real difference. 🎗️ Ataxia UK funds vital research, supports families, and raises awareness across the UK. 💬 Watch their stories, share widely, and help more people understand Friedreich’s Ataxia. Find ou